Round 2 - the ugly word metastasized
There's no sugar coating it and really no getting around it, my oncologist believes the tumor I had on my heart has spread to my lungs. The SEF (Sclerosing Epithelioid Fibrosarcoma) was removed 6 years ago and I did two months of proton radiation treatments at Mass General. They told me then that SEF has a high recurrence at the same location, but it seems mine got in the blood stream and is going after the lungs (also a high occurrence with SEF). I don't have any pain or severe symptoms and there is still a good bit of unknown. The two nodules are in the lower right lung and are close enough they could cut them both out with a "wedge" surgery. They've been steadily growing at about 20% every 3 months for the last couple years but are still pretty small (largest is 6MM). They're too small to do a biopsy yet, so the plan is to re-scan in early Sept and eval then, but the oncologist (who I like a lot) is pretty sure of what we're dealing with and it's a matter of deciding between lung surgery and radiation.
I'm still pretty beat up from cancer round 1, but I'm also still standing and count my blessings every single day. Heck, the oncologist is pretty straight with me and told me 2 years ago he's surprised I'm still here... so my attitude is simple: I'm staying here! For the most part I'm just cruising along and do my best not to dwell on it much, but there are moments it bugs me and I do my best to deal with those times head on and then get back to work. The one that flashes the most is the last lesson we parents get to teach our kids is how to let us go. I'm not ready to teach that lesson anytime soon and I firmly believe it will be many years down the road as a grandfather that I do get to teach it.
Anyway, I still convinced I'll be ok and this is just another in my list of medical challenges. My biggest concerns are for my wife and kids and how much they have to carry me. So, I'll take all the prayers I can get for them.
Three things I tell myself every day:
- "If you're going through hell, keep going" - Winston Churchill
- I believe in the best path and I will fight for it
- I have cancer, cancer does not have me
29 Replies
3d
Prayers and positivity.
(In response to this post by Jeffrey4VT)
4d
I hope this can comfort you: my sister (64), had a very successful minimally invasive lobectomy this morning to remove a 1.5 inch cancerous tumor from her lung. The surgeon did a great job and sheâs doing so much better tonight than anyone expected. Sheâs in good spirits and hopes to be discharged Wednesday. Sending positive vibes to you!
(In response to this post by Jeffrey4VT)
6d
that affects the entire family around the patient).
(In response to this post by Jeffrey4VT)
Prayers to you. Stay strong and live every day
(In response to this post by Jeffrey4VT)
1w
They've never seen me not get up, so I'll just keep getting back up
(In response to this post by AirborneHokie96)
Prayers đđģ ... and love the Churchill quote âđģ
** Edited by Palmetto Hokie at 7/24/2026, 3:29:32 PM
(In response to this post by Jeffrey4VT)
N
Nafeikoh
1w
I'm not the praying type, but I'll be thinking about you going forward. I wish you all the best with your health and if you ever need anything, I think I speak for everyone here... We are here for you.
(In response to this post by Jeffrey4VT)
1w
but this time pointed at me in the fight against the c word, I'll stay in the fight!
(In response to this post by Nafeikoh)
N
Nafeikoh
1w
And I'm super impressed you remembered that!
(In response to this post by Jeffrey4VT)
1w
I was diagnosed with cancer last year, had surgery to remove and am doing well so far. I am hoping it stays gone. Every day is a blessing.
(In response to this post by Jeffrey4VT)
1w
your healing and wisdom for your medical team.
(In response to this post by Jeffrey4VT)
1w
I had a really bad night in my first dealings with the tumor on my heart 6 years ago and yelled at my son... I'll never let myself lash out at my family like that again.
(In response to this post by hokie77)
2
2hhoop3
1w
your family and friends. May you all receive the support you need to handle this situation.
(In response to this post by Jeffrey4VT)
Prayers for you and your family đ.
(In response to this post by Jeffrey4VT)